A young boy collapsed with multiple organ failure just three weeks after his birth in June 2000, surviving since then dependent on a ventilator and hospital staff.
His parents believe that his condition is worsening and he now has a poor quality of life, so have requested that treatment be withdrawn and he be given palliative care.
Yet as recent cases have shown, even when the patient himself agrees that he has no useful quality of life, doctors are reluctant to concede there is no hope.
In this case the medics do not agree that the child’s condition is deteriorating and have applied to the Court for a declaration guiding them whether they should comply with the parents’ wishes.
The case is due to be heard in the High Court on January 25.